Navigating the Workplace with Chronic Illness: How to Advocate for Yourself and Others 

Everyone deserves a fair shot at success, no matter what cards they’ve been dealt.

Working with a chronic illness isn’t just about managing symptoms. It’s about busting misconceptions and turning obstacles into opportunities.

From autoimmune disorders to diabetes to chronic pain, we’re all in this boat together, trying to navigate work while our bodies act up.

And let’s be real. The workplace can be brutal for those of us with chronic illnesses. People don’t always get it, and their skepticism about our abilities can make it feel like we’re banging our heads against a brick wall.

So, grab a seat, and let’s dive into how we can be advocates for ourselves and others at work.

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Start by sharing your story

Advocacy is about shaking things up for the better. Let’s open up about our struggles and show people what it’s really like to work with a chronic illness. Share your story, shed some light on the situation, and watch as people’s perspectives start to shift.

I typically use humor. It tends to make people comfortable and gives them permission to laugh. For example, I’ll share what “cog fog” feels like — when I know what I want to say, but it doesn’t make it from my brain to my mouth:

Cultivate a space of inclusivity

Inclusivity isn’t just about wheelchair ramps. It’s about creating a culture where everyone feels seen and heard.

Lead by example and show compassion for your co-workers dealing with their health stuff or even other life challenges. Trust me, kindness is contagious, and soon enough, you’ll have the whole office on board.

And let’s not forget about those invisible illnesses (ahem, mine, multiple sclerosis [MS]). As we all know, just because your struggle can’t be seen doesn’t mean it isn’t real.

Raise some awareness

Educate, educate, educate. Organize some information sessions, join in on wellness programs, and get involved in awareness campaigns. The more people know about chronic illnesses, the less they’ll buy into ridiculous misconceptions.

And hey, while we’re at it, let’s advocate for some workplace initiatives focused on diversity and accessibility. We all deserve a fair chance to succeed, no matter where we’re coming from or what cards we’ve been dealt.

Get in there and make some noise. Join diversity committees, speak up in policy discussions, and volunteer for initiatives that promote inclusion and accessibility. Your voice matters, and together, we can make some serious waves.

Advocate for accommodations

While we’re at it, let’s push for some changes — flexible hours, remote work options, and periodic breaks, just to name a few. Remember when COVID hit, and suddenly, everyone was working from home? Yeah, that was a game-changer for us.

Finally, companies had to get with the program, and guess what? Productivity didn’t tank. It soared. So, let’s keep pushing for accommodations because, in the end, they benefit everyone — workers and employers alike.

Put it all together and mix well

There you have it — that’s how to go from just another cubicle dweller to a badass advocate for chronic illness warriors everywhere. It’s time to show the world what we’re made of.

Let’s build workplaces that not only accommodate but celebrate the unique strengths and perspectives of those of us with chronic illnesses.

These resources offer a wealth of information, support, and advocacy tools for individuals with chronic illnesses seeking to navigate the workplace and advocate for their needs effectively.

If your condition isn’t listed here, simply Google your condition name and “association” (i.e., multiple sclerosis association). Go get it done. Help yourself. Help others.